The story of our journey through pregnancy, birth and life of my son Emery who was diagnosed with Anecenephaly. Anecenephaly is a neural tube defect that effects 1 in 10,000 pregnancies and is fatal to all babies who have it. Most die before or during birth, some can live for a few hours to few days, and very very few live for longer periods of time. I do not know where this journey will bring us but I want to give my son the best possible life he can have and enjoy all the time we have.
Saturday, November 10, 2012
Mixed emotions
I seem to be having a lot of good days lately with enjoying the time I have with my little boy but every once and a while reality seems to slap me in the face all over again. Last night I had some braxton hicks contractions, and it made me feel so sick and uncomfortable. But it made me really realize that I should get our bags packed...just in case since we have no idea what will happen. Then today when I went to the store it made me so sad looking at all the winter clothes for little boys. I wish some days I could avoid it completely, but where it is located it is impossible to get around. I was excited to have a winter baby and bundle him up I thought it would be so cute. Now I don't need to plan to bundle for my winter boy since chances are he will never leave the hospital. Some days it just leaves me a little bummed thinking about. Also after the contractions last night(which I never had with my daughter) I am scared for the possibility of what if he doesn't make it to our next ultrasound. I want as many pictures as possible and I hope he is comfy inside so he stays there for the next 90 days. That's right, only 90 days until my due date. Time is flying by, I will love to kiss on those little cheeks.
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